Finding news and information on Chronic Traumatic Encephalopathy is critical for patients, families and caregivers. These are organizations we recommend and are glad to highlight.
Links reviewed October 2026.
Support for patients and families
Concussion & CTE Foundation
Formerly the Sports Legacy Institute. Free HelpLine for anyone with lingering concussion symptoms or concerns about CTE, plus peer support and a CTE Resources Facebook group. Facebook · X
Help Hope Live
A nonprofit that helps families raise tax-deductible funds for CTE treatment and long-term care.
Brain Injury Association of America
Support, education and advocacy for people living with brain injury. Facebook · X
Concussion Alliance
Practical guides for people recovering from concussion, including resources for college students.
Brain donation
CTE can currently be confirmed only by examining the brain after death. Brain donation is how researchers are working toward diagnosis and treatment in living patients.
Concussion & CTE Foundation: Pledge Your Brain
Pledge to donate. Families facing an imminent loss can find guidance on imminent brain donation.
Research and medical information
National Institute of Neurological Disorders and Stroke
Traumatic brain injury information, including a section on CTE.
Centers for Disease Control and Prevention
Traumatic brain injury and concussion: symptoms, prevention and where to get help.
Military and veterans
Traumatic Brain Injury Center of Excellence
The Defense Health Agency’s center for brain injury care and research for service members and veterans.
National Intrepid Center of Excellence
Walter Reed’s center for service members with traumatic brain injury.
Domestic violence and brain injury
Center on Partner-Inflicted Brain Injury
A project of the Ohio Domestic Violence Network with materials for survivors and training for advocates.
Domestic Violence and TBI: Understanding the Intersections
Training materials from the Brain Injury Association of New York State and the New York State Coalition Against Domestic Violence, hosted by VAWnet, a project of the National Resource Center on Domestic Violence.
Organizations we follow on X: @ConcussionCTEfn · @brain_trauma · @OmaluFoundation · @BrainLineMil · @biaamerica
If you or someone you know is struggling, call or text 988 (Suicide & Crisis Lifeline, U.S.) to reach someone who can help.
